From 341a7c181f7b520546a8fa377165e0bc9776bcd5 Mon Sep 17 00:00:00 2001 From: YvonneKallberg <35992574+YvonneKallberg@users.noreply.github.com> Date: Fri, 15 Dec 2023 11:36:39 +0100 Subject: [PATCH 1/3] Update se_resources.md Review of all links and resources, and update where necessary --- pages/national_resources/se_resources.md | 28 ++++++++++++------------ 1 file changed, 14 insertions(+), 14 deletions(-) diff --git a/pages/national_resources/se_resources.md b/pages/national_resources/se_resources.md index 6aded0b5a..033fe457b 100644 --- a/pages/national_resources/se_resources.md +++ b/pages/national_resources/se_resources.md @@ -34,19 +34,19 @@ national_resources: related_pages: your_tasks: [dmp, data_publication, sensitive] url: https://nbis.se/support/supportform/index.php?form=consultation - - name: Swedish COVID-19 Data Portal - description: The Swedish COVID-19 Data Portal provides information, guidelines, tools and services to support researchers to utilise Swedish and European infrastructures for data sharing. + - name: Swedish Pathogens Portal + description: The Swedish Pathogens Portal provides information, guidelines, tools and services to support researchers to utilise Swedish and European infrastructures for data sharing. related_pages: tool_assembly: [covid-19] your_domain: [human_data] your_tasks: [sensitive, existing_data, data_publication] - url: https://covid19dataportal.se/ - - name: SNIC - description: The Swedish National Infrastructure for Computing (SNIC) is a national research infrastructure that makes available large-scale high-performance computing resources, storage capacity, and advanced user support, for Swedish research. + url: https://pathogens.se/ + - name: NAISS + description: The National Academic Infrastructure for Super­computing in Sweden (NAISS) is a national research infrastructure that makes available large-scale high-performance computing resources, storage capacity, and advanced user support, for Swedish research. how_to_access: An application is required to gain access to the compute and storage services. related_pages: your_tasks: [data_analysis, storage] - url: https://www.snic.se/ + url: https://www.naiss.se/ - name: SciLifeLab RDM Guidelines description: Knowledge hub for the management of life science research data in Sweden. url: https://data-guidelines.scilifelab.se/ @@ -55,13 +55,13 @@ national_resources: related_pages: your_domain: [human_data] your_tasks: [sensitive] - url: https://nbis.se/support/human-data.html + url: https://data-guidelines.scilifelab.se/topics/research-involving-human-data/ --- ## Introduction -This page provides a general overview of national resources on research data management (RDM) in Sweden, directed towards researchers and official collaborators. National goals and long term data management achievements are provided in the [**Research Bill 2020/21-60**](https://www.regeringen.se/4af915/contentassets/da8732af87a14b689658dadcfb2d3777/forskning-frihet-framtid--kunskap-och-innovation-for-sverige.pdf). +This page provides a general overview of national resources on research data management (RDM) in Sweden, directed towards researchers and official collaborators. National goals and long term data management achievements are provided in the [**Research Bill 2020/21-60**](https://www.regeringen.se/contentassets/da8732af87a14b689658dadcfb2d3777/forskning-frihet-framtid--kunskap-och-innovation-for-sverige.pdf). The Swedish ELIXIR node National Bioinformatics Infrastructure Sweden ([**NBIS**](https://nbis.se/)) offers support and training in data management to life science researchers in Sweden, in collaboration with the [**Data Centre**](https://www.scilifelab.se/data/) at Science for Life Laboratory (SciLifeLab). ## Funders with policies @@ -89,18 +89,18 @@ If personal data is processed in your research, contact your institute’s Data ## Domain-specific infrastructures and resources -The [**SciLifeLab Data Centre**](https://www.scilifelab.se/data) provides services for IT and data management, including Data Stewardship Wizard instance (for writing data management plans), the Swedish COVID-19 data portal, and the SciLifeLab Data Repository. +The [**SciLifeLab Data Centre**](https://www.scilifelab.se/data) provides services for IT and data management, including Data Stewardship Wizard instance (for writing data management plans), the Swedish Pathogens Portal, and the SciLifeLab Data Repository. -Data stewards at [**NBIS**](https://nbis.se/) (ELIXIR-SE) provide consultation and support services regarding data management questions, including e.g. guidance when writing data management plans and when doing submissions to domain-specific repositories. For information about this and other resources at NBIS please see the [**Data Management**](https://nbis.se/infrastructure/data-management/) page. An upcoming resource is the [**Swedish Sensitive Data Archive**](https://nbis.se/infrastructure/sensitive-data-archive.html), a secure data archive and sharing platform for sensitive datasets, which will be integrated with the {% tool "the-european-genome-phenome-archive" %}. +Data stewards at [**NBIS**](https://nbis.se/) (ELIXIR-SE) provide consultation and support services regarding data management questions, including e.g. guidance when writing data management plans and when doing submissions to domain-specific repositories. For information about this and other resources at NBIS please see the [**Data Management**](https://nbis.se/services/guidance-on-data-handling) page. An upcoming resource is the [**FEGA Sweden**](https://fega.nbis.se/), a secure data archive and sharing platform for sensitive datasets, which will be integrated with the {% tool "the-european-genome-phenome-archive" %}. -The [**Swedish National Infrastructure for Computing**](https://snic.se/) (SNIC) is a national research infrastructure that provides resources and user support for large scale computation and data storage to meet the needs of researchers from all scientific disciplines and from all over Sweden. Of particular use for life science researchers is the [**SNIC-SENS**](https://www.uppmax.uu.se/projects-and-collaborations/snic-sens/) project which provides high-performance computing resources for analyzing sensitive data. +The [**National Academic Infrastructure for Super­computing in Sweden**](https://www.naiss.se/) (NAISS) is a national research infrastructure that provides resources and user support for large scale computation and data storage to meet the needs of researchers from all scientific disciplines and from all over Sweden. Of particular use for life science researchers is the [**NAISS-SENS**](https://www.uppmax.uu.se/projects-and-collaborations/naiss-sens/) project which provides high-performance computing resources for analyzing sensitive data. [**Swedish National Data Service**](https://snd.gu.se/en) (SND) with its network of almost 40 higher education institutions and public research institutes, provides researchers with a coordinated and quality-assured system for finding, describing, and sharing research data, nationally as well as internationally. The [**SND network**](https://snd.gu.se/en/about-us/snd-network) has agreed to create local units for managing research data (Data Access Units (DAUs)), with the main task to assist researchers in their respective organisation in making research data as accessible as possible, via training and support in data management. SND also provides a [**DMP checklist**](https://snd.gu.se/en/manage-data/guides/dmp-checklist) to support researchers in writing data management plans. List of universities with established Research Data Offices or Data Access Units (DAUs), with links to local online resources and contact information: -* Chalmers University of Technology - [Research Data Support](https://www.lib.chalmers.se/en/publish-and-analyse/open-access/research-data/) - -* Karolinska Institutet - [Research Data Support](https://staff.ki.se/about-research-data-office-rdo) - -* KTH Royal Institute of Technology - [Research Data Support](https://intra.kth.se/en/forskning/overgripande-stod) - +* Chalmers University of Technology - [Research Data Support](https://www.chalmers.se/en/infrastructure/ecommons/chalmers-data-office/) - +* Karolinska Institutet - [Research Data Support](https://staff.ki.se/research-data-management) - +* KTH Royal Institute of Technology - [Research Data Support](https://www.kth.se/en/biblioteket/publicera-analysera/hantera-forskningsdata/) - * Linköping University - [Research Data Support](https://ep.liu.se/en/datamanagement.aspx) - * Linnaeus University - [Research Data Support](https://lnu.se/en/medarbetare/researcher/researcher5/research-data/) - * Lund University - [Research Data Support](https://www.lub.lu.se/en/services-and-support/research-data/contacts-and-research-data-initiatives) - See web page for contact information From e5bfc6ffa434c1eca0fa503d56c32eefa700fd98 Mon Sep 17 00:00:00 2001 From: YvonneKallberg <35992574+YvonneKallberg@users.noreply.github.com> Date: Fri, 15 Dec 2023 14:33:51 +0100 Subject: [PATCH 2/3] Update se_resources.md --- pages/national_resources/se_resources.md | 2 +- 1 file changed, 1 insertion(+), 1 deletion(-) diff --git a/pages/national_resources/se_resources.md b/pages/national_resources/se_resources.md index 033fe457b..67e49b71a 100644 --- a/pages/national_resources/se_resources.md +++ b/pages/national_resources/se_resources.md @@ -33,7 +33,7 @@ national_resources: how_to_access: Available to everyone with an affiliation to a Swedish academic institution. related_pages: your_tasks: [dmp, data_publication, sensitive] - url: https://nbis.se/support/supportform/index.php?form=consultation + url: https://nbis.se/services/guidance-on-data-handling/apply - name: Swedish Pathogens Portal description: The Swedish Pathogens Portal provides information, guidelines, tools and services to support researchers to utilise Swedish and European infrastructures for data sharing. related_pages: From 3d946fa822f4e8d361789f430bfa2544b1ccf43c Mon Sep 17 00:00:00 2001 From: YvonneKallberg <35992574+YvonneKallberg@users.noreply.github.com> Date: Wed, 20 Dec 2023 15:49:59 +0100 Subject: [PATCH 3/3] Add FEGA-SE to metadata --- pages/national_resources/se_resources.md | 8 +++++++- 1 file changed, 7 insertions(+), 1 deletion(-) diff --git a/pages/national_resources/se_resources.md b/pages/national_resources/se_resources.md index 67e49b71a..cfcc5dc5e 100644 --- a/pages/national_resources/se_resources.md +++ b/pages/national_resources/se_resources.md @@ -56,7 +56,13 @@ national_resources: your_domain: [human_data] your_tasks: [sensitive] url: https://data-guidelines.scilifelab.se/topics/research-involving-human-data/ - + - name: Federated EGA Sweden node + description: Secure archiving and sharing of genetic and phenotypic data resulting from Swedish biomedical research projects. + instance_of: the-european-genome-phenome-archive + related_pages: + your_domain: [human_data] + your_tasks: [sensitive, existing_data, data_publication] + url: https://fega.nbis.se/ --- ## Introduction