Patient-centered Information Commons (PIC)
Patient-centered Information Commons (PIC) aims to create a massively scalable toolkit to enable large, multi-center Patient-centered Information Commons (PIC) at local, regional, and national scale, where the focus is the alignment of all available biomedical data per individual. Such a Commons is a prerequisite for conducting the large-N, Big Data, longitudinal studies essential for understanding causation in the Precision Medicine framework while simultaneously addressing key complexities of the Patient-Centric Outcome Research studies required under ACA (Affordable Care Act). Our proposal is solidly grounded in our experience over the last 25 years of harnessing clinical care data to the research enterprise.
BD2K PIC-SURE RESTful API: http://bd2k-picsure.hms.harvard.edu
ExAC REST API: http://exac.hms.harvard.edu
NHANES patient level public data with 41k patients: https://nhanes.hms.harvard.edu login: demo pass: demo