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chore: Added content to Consortium Data Access Guidelines page (#2809) #2810

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Expand Up @@ -12,7 +12,7 @@ These guidelines represent AnVIL’s expectations for consortia access to data o

AnVIL will facilitate data access and sharing of consortia data in a cloud environment via [Terra Authorization Domains](https://support.terra.bio/hc/en-us/articles/360026775691-Managing-access-to-controlled-data-with-Authorization-Domains).[^1] It is the responsibility of the consortium to set consortium data sharing and access policies and to maintain the list of consortium members with access privileges (the “consortium access list”), which is used to manage access to data. In most cases, the expectation is that consortium-generated data will be shared through AnVIL with the broader scientific community in accordance with the NIH GDS Policy. Consortium data access should not be used to delay/avoid broad data sharing with the scientific community.

Consortium access will be terminated six months after the consortium’s Project End Date of the related NIH grant(s), at which time the consortium members will be able to obtain access through typical data access procedures. Extension requests for consortium data access can be made by the NIH program officer.[^2]
Consortium access will be terminated six months after the consortium’s Project End Date of the related NIH grant(s), at which time the consortium members will be able to obtain access through typical data access procedures. Extension requests for consortium data access can be made by the NIH program officer.[^2] For Intramural NHGRI Investigators, consortium access will be verified with the Clinical and/or Scientific Director upon its establishment and each subsequent quadrennial review and will generally be terminated when consortium activities have ended or following close-out of the NIH investigator’s project. For Intramural investigators from other NIH ICs, consortium access will be considered by AnVIL program directors on a case-by-case basis.

### General Expectations for Consortia Access to Data

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