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Merge pull request #19 from eipm/v3.20.0
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v3.20.0
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zisimo authored Nov 13, 2024
2 parents 3d7cacb + 7528061 commit 699c196
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35 changes: 18 additions & 17 deletions README.md
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REDCap Data Dictionary and Metadata for the Bridge2AI project.

[![Github](https://img.shields.io/badge/github-3.19.0-green?style=flat&logo=github)](https://github.com/eipm/bridge2ai-redcap) [![License: MIT](https://img.shields.io/badge/License-MIT-yellow.svg)](https://opensource.org/licenses/MIT) [![DOI](https://zenodo.org/badge/DOI/10.5281/zenodo.12760724.svg)](https://zenodo.org/doi/10.5281/zenodo.12760724)
[![Github](https://img.shields.io/badge/github-3.20.0-green?style=flat&logo=github)](https://github.com/eipm/bridge2ai-redcap) [![License: MIT](https://img.shields.io/badge/License-MIT-yellow.svg)](https://opensource.org/licenses/MIT) [![DOI](https://zenodo.org/badge/DOI/10.5281/zenodo.12760724.svg)](https://zenodo.org/doi/10.5281/zenodo.12760724)

| Version | Date YYYY-mm-dd | Data Dictionary | Metadata | Instrument PDF's |
| :---: | :---: | :---: | :---: | :---: |
| v3.19.0 | 2024-10-25 | [Data Dictionary](data/bridge2ai_voice_project_data_dictionary.csv) | [Metadata](data/bridge2ai_voice_project_metadata.xml) | [Files](data/instrument_pdfs/) |
| v3.20.0 | 2024-11-13 | [Data Dictionary](data/bridge2ai_voice_project_data_dictionary.csv) | [Metadata](data/bridge2ai_voice_project_metadata.xml) | [Files](data/instrument_pdfs/) |

## 🤝 License
See [LICENSE](./LICENSE)
Expand Down Expand Up @@ -114,21 +114,22 @@ All Questionnaires are available in .pdf under [data/instrument_pdfs](data/instr
| # | Protocol | Clinically Validated Diagnosis | Form PDF Link |
| :---: | :---: | :---: | :---: |
| 1 | Voice Disorders Protocol | Benign Lessions | [PDF](data/instrument_pdfs/D%20Voice%20Benign%20Lesions.pdf) |
| 2 | Voice Disorders Protocol | Laryngeal Cancer | [PDF](data/instrument_pdfs/D%20Voice%20Laryngeal%20Cancer.pdf) |
| 3 | Voice Disorders Protocol | Laryngitis | [PDF](data/instrument_pdfs/D%20Voice%20Laryngitis.pdf) |
| 4 | Voice Disorders Protocol | Muscle Tension Dysphonia | [PDF](data/instrument_pdfs/D%20Voice%20Muscle%20Tension%20Dysphonia%20Mtd.pdf) |
| 5 | Voice Disorders Protocol | Precancerous Lessions | [PDF](data/instrument_pdfs/D%20Voice%20Precancerous%20Lesions.pdf) |
| 6 | Voice Disorders Protocol | Laryngeal Dystonia | [PDF](data/instrument_pdfs/D%20Voice%20Laryngeal%20Dystonia.pdf) |
| 7 | Voice Disorders Protocol | Unilateral vocal fold paralysis | [PDF](data/instrument_pdfs/D%20Voice%20Unilateral%20Vocal%20Fold%20Paralysis.pdf) |
| 8 | Mood and Psychiatric Disorders Protocol | Anxiety Disorder | [PDF](data/instrument_pdfs/D%20Mood%20Anxiety%20Disorder.pdf) |
| 9 | Mood and Psychiatric Disorders Protocol | Bipolar Disorder | [PDF](data/instrument_pdfs/D%20Mood%20Bipolar%20Disorder.pdf) |
| 10 | Mood and Psychiatric Disorders Protocol | Depression or Major Depressive Disorder | [PDF](data/instrument_pdfs/D%20Mood%20Depression%20Or%20Major%20Depressive%20Disorder.pdf) |
| 11 | Respiratoty Disorders | Airway Stenosis | [PDF](data/instrument_pdfs/D%20Resp%20Airway%20Stenosis.pdf) |
| 12 | Respiratoty Disorders | Unexplained Chronic Cough | [PDF](data/instrument_pdfs/D%20Resp%20-%20Unexplained%20Chronic%20Cough.pdf) |
| 13 | Neurological and Neurodegenerative Disorders | Alzheimer's, dementia, or mild cognitive impairment | [PDF](data/instrument_pdfs/D%20Neuro%20Alzheimers%20Disease%20Mild%20Cognitive%20Impairment.pdf) |
| 14 | Neurological and Neurodegenerative Disorders | Amyotrophic Lateral Sclerosis (ALS) | [PDF](data/instrument_pdfs/D%20Neuro%20Amyotrophic%20Lateral%20Sclerosis%20Als.pdf) |
| 15 | Neurological and Neurodegenerative Disorders | Parkinson's disease | [PDF](data/instrument_pdfs/D%20Neuro%20Parkinsons%20Disease.pdf) |
| 16 | Control | Control | [PDF](data/instrument_pdfs/D%20Control.pdf) |
| 2 | Voice Disorders Protocol | Voice Glottic Insufficiency / Presbyphonia | [PDF](data/instrument_pdfs/D%20Voice%20Glottic%20Insufficiency.pdf) |
| 3 | Voice Disorders Protocol | Laryngeal Cancer | [PDF](data/instrument_pdfs/D%20Voice%20Laryngeal%20Cancer.pdf) |
| 4 | Voice Disorders Protocol | Laryngitis | [PDF](data/instrument_pdfs/D%20Voice%20Laryngitis.pdf) |
| 5 | Voice Disorders Protocol | Muscle Tension Dysphonia | [PDF](data/instrument_pdfs/D%20Voice%20Muscle%20Tension%20Dysphonia%20Mtd.pdf) |
| 6 | Voice Disorders Protocol | Precancerous Lessions | [PDF](data/instrument_pdfs/D%20Voice%20Precancerous%20Lesions.pdf) |
| 7 | Voice Disorders Protocol | Laryngeal Dystonia | [PDF](data/instrument_pdfs/D%20Voice%20Laryngeal%20Dystonia.pdf) |
| 8 | Voice Disorders Protocol | Unilateral vocal fold paralysis | [PDF](data/instrument_pdfs/D%20Voice%20Unilateral%20Vocal%20Fold%20Paralysis.pdf) |
| 9 | Mood and Psychiatric Disorders Protocol | Anxiety Disorder | [PDF](data/instrument_pdfs/D%20Mood%20Anxiety%20Disorder.pdf) |
| 10 | Mood and Psychiatric Disorders Protocol | Bipolar Disorder | [PDF](data/instrument_pdfs/D%20Mood%20Bipolar%20Disorder.pdf) |
| 11 | Mood and Psychiatric Disorders Protocol | Depression or Major Depressive Disorder | [PDF](data/instrument_pdfs/D%20Mood%20Depression%20Or%20Major%20Depressive%20Disorder.pdf) |
| 12 | Respiratoty Disorders | Airway Stenosis | [PDF](data/instrument_pdfs/D%20Resp%20Airway%20Stenosis.pdf) |
| 13 | Respiratoty Disorders | Unexplained Chronic Cough | [PDF](data/instrument_pdfs/D%20Resp%20-%20Unexplained%20Chronic%20Cough.pdf) |
| 14 | Neurological and Neurodegenerative Disorders | Alzheimer's, dementia, or mild cognitive impairment | [PDF](data/instrument_pdfs/D%20Neuro%20Alzheimers%20Disease%20Mild%20Cognitive%20Impairment.pdf) |
| 15 | Neurological and Neurodegenerative Disorders | Amyotrophic Lateral Sclerosis (ALS) | [PDF](data/instrument_pdfs/D%20Neuro%20Amyotrophic%20Lateral%20Sclerosis%20Als.pdf) |
| 16 | Neurological and Neurodegenerative Disorders | Parkinson's disease | [PDF](data/instrument_pdfs/D%20Neuro%20Parkinsons%20Disease.pdf) |
| 17 | Control | Control | [PDF](data/instrument_pdfs/D%20Control.pdf) |

---

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44 changes: 40 additions & 4 deletions data/bridge2ai_voice_project_data_dictionary.csv
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"Variable / Field Name","Form Name","Section Header","Field Type","Field Label","Choices, Calculations, OR Slider Labels","Field Note","Text Validation Type OR Show Slider Number","Text Validation Min","Text Validation Max",Identifier?,"Branching Logic (Show field only if...)","Required Field?","Custom Alignment","Question Number (surveys only)","Matrix Group Name","Matrix Ranking?","Field Annotation"
"Variable / Field Name","Form Name","Section Header","Field Type","Field Label","Choices, Calculations, OR Slider Labels","Field Note","Text Validation Type OR Show Slider Number","Text Validation Min","Text Validation Max",Identifier?,"Branching Logic (Show field only if...)","Required Field?","Custom Alignment","Question Number (surveys only)","Matrix Group Name","Matrix Ranking?","Field Annotation"
record_id,subjectparticipant_basic_information,,text,"Record ID",,,,,,,,,,,,,
age,subjectparticipant_basic_information,,calc,Age,"rounddown((datediff([dob],""today"",""y"",""ymd"")),0)",,,,,,,,,,,,
selected_language,subjectparticipant_basic_information,,radio,Language,"1, English | 2, French | 3, Spanish",,,,,,,y,,,,,
Expand All @@ -23,7 +23,8 @@ contact_info_stored,subjectparticipant_contact_information,,yesno,"I want my con
eligible_studies,subjectparticipant_eligible_studies,"Eligible Studies",checkbox,"Eligible Studies","1, Voice Disorders | 2, Neurological and Neurodegenerative Disorders | 3, Mood and Psychiatric Disorders | 4, Respiratory Disorders | age_2_4, Pediatric Disorders - Ages [2-4) | age_4_6, Pediatric Disorders - Ages [4-6) | age_6_10, Pediatric Disorders - Ages [6-10) | age_10_plus, Pediatric Disorders - Ages 10+ | 5, Pediatric Placeholder",,,,,,,y,,,,,
is_control_participant,subjectparticipant_eligible_studies,,radio,"Is Control Participant?","yes, Yes | no, No",,,,,,,y,,,,,
cond_sel_prompt,subjectparticipant_eligible_studies,"Do you have any of these conditions, diagnosed by a clinician?",descriptive,"(Check all that apply if you currently have the condition)",,,,,,,,,,,,,
laryng_cancer,subjectparticipant_eligible_studies,"Voice Disorders",radio,"Laryngeal Cancer","0, Unchecked | 1, Checked",,,,,,,y,,,voice_disorders,,
glottic_insufficiency,subjectparticipant_eligible_studies,"Voice Disorders",radio,"Glottic Insufficiency / Presbyphonia","0, Unchecked | 1, Checked",,,,,,,y,,,voice_disorders,,
laryng_cancer,subjectparticipant_eligible_studies,,radio,"Laryngeal Cancer","0, Unchecked | 1, Checked",,,,,,,y,,,voice_disorders,,
laryngitis,subjectparticipant_eligible_studies,,radio,Laryngitis,"0, Unchecked | 1, Checked",,,,,,,y,,,voice_disorders,,
benign_cord_lesion,subjectparticipant_eligible_studies,,radio,"Lesions of the vocal cord (nodule, polyp, cyst)","0, Unchecked | 1, Checked",,,,,,,y,,,voice_disorders,,
mtd,subjectparticipant_eligible_studies,,radio,"Muscle Tension Dysphonia (MTD)","0, Unchecked | 1, Checked",,,,,,,y,,,voice_disorders,,
Expand Down Expand Up @@ -76,7 +77,8 @@ ef_fluent_languages,enrollment_form,,checkbox,"Do you speak any additional langu
ef_fluent_language_other,enrollment_form,,text,"If you speak any other languages fluently, please specify:",,,,,,,"[ef_fluent_languages(5)] = '1'",,,,,,
ef_dob,enrollment_form,,text,"What is your date of birth?",,,date_ymd,,,y,,y,,,,,
ef_cond_prompt,enrollment_form,"Do you have any of these conditions, diagnosed by a clinician?",descriptive,"(Check all that apply if you currently have the condition)",,,,,,,,,,,,,
ef_laryng_cancer,enrollment_form,"Voice Disorders",radio,"Laryngeal Cancer","0, Unchecked | 1, Checked",,,,,,,y,,,ef_voice_disorders,,
ef_glottic_insufficiency,enrollment_form,"Voice Disorders",radio,"Glottic Insufficiency / Presbyphonia","0, Unchecked | 1, Checked",,,,,,,y,,,ef_voice_disorders,,
ef_laryng_cancer,enrollment_form,,radio,"Laryngeal Cancer","0, Unchecked | 1, Checked",,,,,,,y,,,ef_voice_disorders,,
ef_laryngitis,enrollment_form,,radio,Laryngitis,"0, Unchecked | 1, Checked",,,,,,,y,,,ef_voice_disorders,,
ef_benign_cord_lesion,enrollment_form,,radio,"Lesions of the vocal cord (nodule, polyp, cyst)","0, Unchecked | 1, Checked",,,,,,,y,,,ef_voice_disorders,,
ef_mtd,enrollment_form,,radio,"Muscle Tension Dysphonia (MTD)","0, Unchecked | 1, Checked",,,,,,,y,,,ef_voice_disorders,,
Expand Down Expand Up @@ -140,6 +142,40 @@ paper_consent_uploaded_by,bridge2ai_paper_consent_all_sites_english,,text,"Paper
@READONLY"
diagnosis_c_ac,d_control,,radio,"Based on the assessment you made of the patient, and by hearing their voice, do you think this patient has any condition affecting their speech or voice?","yes, Yes | no, No | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_c_ac_specified,d_control,,text,"Please specify:",,,,,,,"[diagnosis_c_ac] = 'yes'",,,,,,
diagnois_gi_gsd,d_voice_glottic_insufficiency_presbyphonia,"1. Gold Standard Diagnosis",radio,"Does the patient have a benign lesion confirmed by laryngoscopy/stroboscopy?","yes, Yes | no, No | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_gi_d,d_voice_glottic_insufficiency_presbyphonia,"2. Disease Subtype/etiology",radio,"What is the glottic insufficiency diagnosis?","vocalFoldAtrophyRelatedToAging, Vocal fold atrophy related to aging (Presbyphonia) | vocalFoldAtrophyRelatedToOtherCause, Vocal fold atrophy related to other cause | bilateralSulcus, Bilateral sulcus | other, Other",,,,,,,y,,,,,
diagnosis_gi_d_other,d_voice_glottic_insufficiency_presbyphonia,,text,"Please specify",,,,,,,"[diagnosis_gi_d]=""other""",,,,,,
diagnosis_gi_d_aoc,d_voice_glottic_insufficiency_presbyphonia,,radio,"What is the glottic insufficiency diagnosis?","severeIllness, Severe illness | rapidWeightLoss, Rapid weight loss | hormonalChanges, Hormonal changes | other, Other",,,,,,"[diagnosis_gi_d]=""vocalFoldAtrophyRelatedToOtherCause""",y,,,,,
diagnosis_gi_d_aoc_other,d_voice_glottic_insufficiency_presbyphonia,,text,"Please specify",,,,,,,"[diagnosis_gi_d_aoc]=""other""",,,,,,
diagnosis_gi_dogg,d_voice_glottic_insufficiency_presbyphonia,"3. Disease Severity",radio,"Please assess degree of glottic gap:","small, Small | moderate, Moderate | large, Large",,,,,,,y,,,,,
diagnosis_gi_slogg,d_voice_glottic_insufficiency_presbyphonia,,checkbox,"Please assess shape/location of glottic gap. Choose all that apply.","spindle_shaped, Spindle shaped | anterior_glottic_gap, Anterior Glottic gap | posterior_glottic_gap, Posterior glottic gap | asymmetric, Asymmetric",,,,,,,y,,,,,
diagnosis_gi_degree_text,d_voice_glottic_insufficiency_presbyphonia,,descriptive,"Degree of dysphonia

CAPE-V scale",,,,,,,,,,,,,
diagnosis_gi_degree_legend,d_voice_glottic_insufficiency_presbyphonia,,descriptive,"<div class=""rich-text-field-label""><p>Legend<span style=""font-weight: normal;"">: C- Sonsistent I = Intermittent</span><br><span style=""font-weight: normal;"">                MI = Mildly Deviant</span><br><span style=""font-weight: normal;"">                MO = Moderately Deviant</span><br><span style=""font-weight: normal;"">                SE = Severely Deviant</span></p></div>",,,,,,,,,,,,,
diagnosis_gi_degree_os_1,d_voice_glottic_insufficiency_presbyphonia,,slider,"Overall Severity","MI | MO | SE",,number,,,,,,RH,,,,
diagnosis_gi_degree_os_2,d_voice_glottic_insufficiency_presbyphonia,,radio,"Overall Severity","consistent, Consistent | intermittent, Intermittent",,,,,,,,RH,,,,
diagnosis_gi_degree_r_1,d_voice_glottic_insufficiency_presbyphonia,,slider,Roughness,"MI | MO | SE",,number,,,,,,RH,,,,
diagnosis_gi_degree_r_2,d_voice_glottic_insufficiency_presbyphonia,,radio,Roughness,"consistent, Consistent | intermittent, Intermittent",,,,,,,,RH,,,,
diagnosis_gi_degree_b_1,d_voice_glottic_insufficiency_presbyphonia,,slider,Breathiness,"MI | MO | SE",,number,,,,,,RH,,,,
diagnosis_gi_degree_b_2,d_voice_glottic_insufficiency_presbyphonia,,radio,Breathiness,"consistent, Consistent | intermittent, Intermittent",,,,,,,,RH,,,,
diagnosis_gi_degree_s_1,d_voice_glottic_insufficiency_presbyphonia,,slider,Strain,"MI | MO | SE",,number,,,,,,RH,,,,
diagnosis_gi_degree_s_2,d_voice_glottic_insufficiency_presbyphonia,,radio,Strain,"consistent, Consistent | intermittent, Intermittent",,,,,,,,RH,,,,
diagnosis_gi_degree_p_1,d_voice_glottic_insufficiency_presbyphonia,,slider,Pitch,"MI | MO | SE",,number,,,,,,RH,,,,
diagnosis_gi_degree_p_nature,d_voice_glottic_insufficiency_presbyphonia,,text,"Pitch
(Indicate the nature of the abnormality):",,,,,,,"[diagnosis_gi_degree_p_1] > 0",,RH,,,,
diagnosis_gi_degree_p_2,d_voice_glottic_insufficiency_presbyphonia,,radio,Pitch,"consistent, Consistent | intermittent, Intermittent",,,,,,,,RH,,,,
diagnosis_gi_degree_l_1,d_voice_glottic_insufficiency_presbyphonia,,slider,Loudness,"MI | MO | SE",,number,,,,,,RH,,,,
diagnosis_gi_degree_l_nature,d_voice_glottic_insufficiency_presbyphonia,,text,"Loudness
(Indicate the nature of the abnormality):",,,,,,,"[diagnosis_gi_degree_l_1] > 0",,RH,,,,
diagnosis_gi_degree_l_2,d_voice_glottic_insufficiency_presbyphonia,,radio,Loudness,"consistent, Consistent | intermittent, Intermittent",,,,,,,,RH,,,,
diagnosis_gi_degree_comments,d_voice_glottic_insufficiency_presbyphonia,,radio,"Comments about resonance","normal, Normal | other, Other",,,,,,,,RH,,,,
diagnosis_gi_degree_comments_other,d_voice_glottic_insufficiency_presbyphonia,,text,"Please specify",,,,,,,[diagnosis_gi_degree_comments]='other',,,,,,
diagnosis_gi_degree_comments_other_2,d_voice_glottic_insufficiency_presbyphonia,,text,"Additional Features
(for example, diplophonia, fry, falsetto, asthenia, aphonia, pitch instability, tremor, wet/gurgly, or other relevant terms):",,,,,,,,,,,,,
diagnosis_gi_treatment,d_voice_glottic_insufficiency_presbyphonia,"4. Treatment obtained",radio,"Has the patient undergone any treatment for his condition?","yes, Yes | no, No",,,,,,,y,,,,,
diagnosis_gi_treatment_select,d_voice_glottic_insufficiency_presbyphonia,,checkbox,"Select all that apply:","voice_or_speech_therapy, Voice/speech therapy | injection_laryngoplasty, Injection laryngoplasty | bilateral_medialization_thyroplasty, Bilateral medialization thyroplasty | other, Other",,,,,,"[diagnosis_gi_treatment]=""yes""",y,,,,,
diagnosis_gi_treatment_other,d_voice_glottic_insufficiency_presbyphonia,,text,"Other, please specify",,,,,,,"[diagnosis_gi_treatment_select(other)]=""1""",y,,,,,
diagnois_bl_gsd,d_voice_benign_lesions,"1. Gold Standard Diagnosis",radio,"Does the patient have a benign lesion confirmed by laryngoscopy/stroboscopy?","yes, Yes | no, No | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_bl_ds,d_voice_benign_lesions,"2. Disease Subtype",radio,"What is the benign lesion diagnosis?","vocalFoldNodules, Vocal fold nodules | vocalFoldPolyp, Vocal fold polyp | vocalFoldCyst, Vocal fold cyst | reinkesEdema, Reinke's edema | vocalFoldUlcers, Vocal fold ulcers | recurrentRespiratoryPapilloma, Recurrent respiratory papilloma | fibrousMasses, Fibrous masse (s) | rheumatoidNodules, Rheumatoid nodules | other, Other",,,,,,,y,,,,,
diagnosis_bl_ds_other,d_voice_benign_lesions,,text,"Please specify",,,,,,,"[diagnosis_bl_ds]=""other""",,,,,,
Expand Down Expand Up @@ -656,8 +692,8 @@ diagnosis_ucc_huse,d_resp_unexplained_chronic_cough,,radio,"Has the patient unde
diagnosis_ucc_oai,d_resp_unexplained_chronic_cough,,radio,"Is the patient on ACE-inhibitors (example: lisinopril; captopril)?","no, No | yes, Yes | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_ucc_pdapc,d_resp_unexplained_chronic_cough,,radio,"Has postnasal drainage been addressed as a potential cause of the cough (through nasal sprays and antihistamines)?","no, No | yes, Yes | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_ucc_gediapc,d_resp_unexplained_chronic_cough,,radio,"Has gastro-esophageal disease been investigated as a possible cause of the cough?","no, No | yes, Yes | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_ucc_atot,d_resp_unexplained_chronic_cough,,checkbox,"How was it investigated? (Select all that apply)","trial_of_proton_pump_inhibitor, Trial of proton pump inhibitor | phimpedance_probe_or_bravo_probe, pH-impedance probe or Bravo probe | egd_or_tne, EGD/TNE | other, Other (H2-blocker, lifestyle change, alginates)",,,,,,"[diagnosis_ucc_gediapc] = ""yes""",y,,,,,
diagnosis_ucc_huatot,d_resp_unexplained_chronic_cough,,radio,"Has the patient undergone allergy testing or allergy therapy?","no, No | yes, Yes | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_ucc_atot,d_resp_unexplained_chronic_cough,,checkbox,"How was it investigated? (Select all that apply)","trial_of_proton_pump_inhibitor, Trial of proton pump inhibitor | phimpedance_probe_or_bravo_probe, pH-impedance probe or Bravo probe | egd_or_tne, EGD/TNE | other, Other (H2-blocker, lifestyle change, alginates)",,,,,,"[diagnosis_ucc_huatot] = ""yes""",y,,,,,
diagnosis_ucc_hurada,d_resp_unexplained_chronic_cough,,radio,"Has the patient undergone assessment that includes bronchial hyperresponsiveness and eosinophilic bronchitis (sputum eosinophilia or exhaled nitric oxide), or a therapeutic corticosteroid trial?","no, No | yes, Yes | notCertain, Not certain",,,,,,,y,,,,,
diagnosis_ucc_rada,d_resp_unexplained_chronic_cough,,radio,Result,"positive, Positive for reactive airway disease | negative, Negative for reactive airway disease",,,,,,"[diagnosis_ucc_hurada] = ""yes""",y,,,,,
diagnosis_ucc_at,d_resp_unexplained_chronic_cough,"2. Treatment obtained",radio,"Has the patient undergone any treatment for this condition?","yes, Yes | no, No | notCertain, Not Certain",,,,,,,y,,,,,
Expand Down
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