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Update se_resources.md (#1430)
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* Update se_resources.md

Review of all links and resources, and update where necessary

* Update se_resources.md

* Add FEGA-SE to metadata
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YvonneKallberg authored Dec 21, 2023
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Showing 1 changed file with 22 additions and 16 deletions.
38 changes: 22 additions & 16 deletions pages/national_resources/se_resources.md
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Expand Up @@ -33,20 +33,20 @@ national_resources:
how_to_access: Available to everyone with an affiliation to a Swedish academic institution.
related_pages:
your_tasks: [dmp, data_publication, sensitive]
url: https://nbis.se/support/supportform/index.php?form=consultation
- name: Swedish COVID-19 Data Portal
description: The Swedish COVID-19 Data Portal provides information, guidelines, tools and services to support researchers to utilise Swedish and European infrastructures for data sharing.
url: https://nbis.se/services/guidance-on-data-handling/apply
- name: Swedish Pathogens Portal
description: The Swedish Pathogens Portal provides information, guidelines, tools and services to support researchers to utilise Swedish and European infrastructures for data sharing.
related_pages:
tool_assembly: [covid-19]
your_domain: [human_data]
your_tasks: [sensitive, existing_data, data_publication]
url: https://covid19dataportal.se/
- name: SNIC
description: The Swedish National Infrastructure for Computing (SNIC) is a national research infrastructure that makes available large-scale high-performance computing resources, storage capacity, and advanced user support, for Swedish research.
url: https://pathogens.se/
- name: NAISS
description: The National Academic Infrastructure for Super­computing in Sweden (NAISS) is a national research infrastructure that makes available large-scale high-performance computing resources, storage capacity, and advanced user support, for Swedish research.
how_to_access: An application is required to gain access to the compute and storage services.
related_pages:
your_tasks: [data_analysis, storage]
url: https://www.snic.se/
url: https://www.naiss.se/
- name: SciLifeLab RDM Guidelines
description: Knowledge hub for the management of life science research data in Sweden.
url: https://data-guidelines.scilifelab.se/
Expand All @@ -55,13 +55,19 @@ national_resources:
related_pages:
your_domain: [human_data]
your_tasks: [sensitive]
url: https://nbis.se/support/human-data.html

url: https://data-guidelines.scilifelab.se/topics/research-involving-human-data/
- name: Federated EGA Sweden node
description: Secure archiving and sharing of genetic and phenotypic data resulting from Swedish biomedical research projects.
instance_of: the-european-genome-phenome-archive
related_pages:
your_domain: [human_data]
your_tasks: [sensitive, existing_data, data_publication]
url: https://fega.nbis.se/
---

## Introduction

This page provides a general overview of national resources on research data management (RDM) in Sweden, directed towards researchers and official collaborators. National goals and long term data management achievements are provided in the [**Research Bill 2020/21-60**](https://www.regeringen.se/4af915/contentassets/da8732af87a14b689658dadcfb2d3777/forskning-frihet-framtid--kunskap-och-innovation-for-sverige.pdf).
This page provides a general overview of national resources on research data management (RDM) in Sweden, directed towards researchers and official collaborators. National goals and long term data management achievements are provided in the [**Research Bill 2020/21-60**](https://www.regeringen.se/contentassets/da8732af87a14b689658dadcfb2d3777/forskning-frihet-framtid--kunskap-och-innovation-for-sverige.pdf).
The Swedish ELIXIR node National Bioinformatics Infrastructure Sweden ([**NBIS**](https://nbis.se/)) offers support and training in data management to life science researchers in Sweden, in collaboration with the [**Data Centre**](https://www.scilifelab.se/data/) at Science for Life Laboratory (SciLifeLab).

## Funders with policies
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## Domain-specific infrastructures and resources

The [**SciLifeLab Data Centre**](https://www.scilifelab.se/data) provides services for IT and data management, including Data Stewardship Wizard instance (for writing data management plans), the Swedish COVID-19 data portal, and the SciLifeLab Data Repository.
The [**SciLifeLab Data Centre**](https://www.scilifelab.se/data) provides services for IT and data management, including Data Stewardship Wizard instance (for writing data management plans), the Swedish Pathogens Portal, and the SciLifeLab Data Repository.

Data stewards at [**NBIS**](https://nbis.se/) (ELIXIR-SE) provide consultation and support services regarding data management questions, including e.g. guidance when writing data management plans and when doing submissions to domain-specific repositories. For information about this and other resources at NBIS please see the [**Data Management**](https://nbis.se/infrastructure/data-management/) page. An upcoming resource is the [**Swedish Sensitive Data Archive**](https://nbis.se/infrastructure/sensitive-data-archive.html), a secure data archive and sharing platform for sensitive datasets, which will be integrated with the {% tool "the-european-genome-phenome-archive" %}.
Data stewards at [**NBIS**](https://nbis.se/) (ELIXIR-SE) provide consultation and support services regarding data management questions, including e.g. guidance when writing data management plans and when doing submissions to domain-specific repositories. For information about this and other resources at NBIS please see the [**Data Management**](https://nbis.se/services/guidance-on-data-handling) page. An upcoming resource is the [**FEGA Sweden**](https://fega.nbis.se/), a secure data archive and sharing platform for sensitive datasets, which will be integrated with the {% tool "the-european-genome-phenome-archive" %}.

The [**Swedish National Infrastructure for Computing**](https://snic.se/) (SNIC) is a national research infrastructure that provides resources and user support for large scale computation and data storage to meet the needs of researchers from all scientific disciplines and from all over Sweden. Of particular use for life science researchers is the [**SNIC-SENS**](https://www.uppmax.uu.se/projects-and-collaborations/snic-sens/) project which provides high-performance computing resources for analyzing sensitive data.
The [**National Academic Infrastructure for Super­computing in Sweden**](https://www.naiss.se/) (NAISS) is a national research infrastructure that provides resources and user support for large scale computation and data storage to meet the needs of researchers from all scientific disciplines and from all over Sweden. Of particular use for life science researchers is the [**NAISS-SENS**](https://www.uppmax.uu.se/projects-and-collaborations/naiss-sens/) project which provides high-performance computing resources for analyzing sensitive data.

[**Swedish National Data Service**](https://snd.gu.se/en) (SND) with its network of almost 40 higher education institutions and public research institutes, provides researchers with a coordinated and quality-assured system for finding, describing, and sharing research data, nationally as well as internationally. The [**SND network**](https://snd.gu.se/en/about-us/snd-network) has agreed to create local units for managing research data (Data Access Units (DAUs)), with the main task to assist researchers in their respective organisation in making research data as accessible as possible, via training and support in data management. SND also provides a [**DMP checklist**](https://snd.gu.se/en/manage-data/guides/dmp-checklist) to support researchers in writing data management plans.

List of universities with established Research Data Offices or Data Access Units (DAUs), with links to local online resources and contact information:
* Chalmers University of Technology - [Research Data Support](https://www.lib.chalmers.se/en/publish-and-analyse/open-access/research-data/) - <[email protected]>
* Karolinska Institutet - [Research Data Support](https://staff.ki.se/about-research-data-office-rdo) - <[email protected]>
* KTH Royal Institute of Technology - [Research Data Support](https://intra.kth.se/en/forskning/overgripande-stod) - <[email protected]>
* Chalmers University of Technology - [Research Data Support](https://www.chalmers.se/en/infrastructure/ecommons/chalmers-data-office/) - <[email protected]>
* Karolinska Institutet - [Research Data Support](https://staff.ki.se/research-data-management) - <[email protected]>
* KTH Royal Institute of Technology - [Research Data Support](https://www.kth.se/en/biblioteket/publicera-analysera/hantera-forskningsdata/) - <[email protected]>
* Linköping University - [Research Data Support](https://ep.liu.se/en/datamanagement.aspx) - <[email protected]>
* Linnaeus University - [Research Data Support](https://lnu.se/en/medarbetare/researcher/researcher5/research-data/) - <[email protected]>
* Lund University - [Research Data Support](https://www.lub.lu.se/en/services-and-support/research-data/contacts-and-research-data-initiatives) - See web page for contact information
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